Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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I think one of the hardest thi…


I think one of the hardest things about this journey is the developmental uncertainty. Here’s what I mean by that. When…

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Just got back from Disney….


Just got back from Disney. How did it go? I think my kids did better than me on the rollercoasters and this was…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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