Jonny’s first shots


…Were awful. He was soooo happy the whole appointment. He didn’t fuss or cry at all when the doctor was measuring and…

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Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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“What will happen when I’m gone?”


"What will happen when I'm gone?" Our goal is for them to learn to live independently. To support themselves. I suppose…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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