Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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I got these ear defe…


I got these ear defenders for Jojo last year. Even though I think they would help, he won't wear them. I don't think he…

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It’s been a long lon…


It's been a long long month already. Between the kids starting school, working to get Jojo services, keeping up with…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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