Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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Jonny wanted one las…


Jonny wanted one last picture with these stuffies before giving them away to a family in need… (Of course this…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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