Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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“It’s Bubba and Jojo time!”


"It's Bubba and Jojo time!" Jonny just got back from a week away at kids camp (the first time he has been away from…

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Jojo’s teacher sent …


Jojo’s teacher sent me this photo the other day. This captures Jonah perfectly. This is the uninhibited joy of doing…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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