Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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New Pics & update


We are counting down the days until Jonny finally gets his cast off. December 19th at 1:20. T-minus 12 days and his 12…

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How do I know that J…


How do I know that Jonah loves school? He would rather wait on the sidewalk for however long (hours if necessary), than…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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