Just put Jonah to be…


Just put Jonah to bed... in his bed and he fell asleep within 20 minutes. (Whaaaatt??) 😎 I know a lot of you guys are…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Playing Catch with my Ausome Son (video)


This hits home for me. Just before Jonah was officially dıagnosed, I was in a very "dark" place emotionally. I grew…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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