Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Yes. I am learning this more and more each day…


Yes. I am learning this more and more each day. He is the same boy he was when we brought him home from the hospital. A…

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So I need suggestion…


So I need suggestions on how to keep the tide from coming in. 🙄🤣😭 Asking for a child who is furious with the sea and…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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