Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Exactly….


Exactly. Jonah doesn't "stim" a lot. He has great coordination and is athletic. He can get overwhelmed with large…

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Jonah learned a new word… (video)


Jonah learned a new word. And I will celebrate it with him. EVERY TIME. The journey from where we started to where we…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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