Being able to go out… (video)


Being able to go out and do fun things like this has had a HUGE positive effect on Jojo (and ALL of us, really) and…

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“I’m not getting bigger!”…


“I’m not getting bigger!” Jonah hit a growth spurt over the summer and is now 5’1”. Just don’t tell him that. He will…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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