So Jonny will be 13 in July…


So Jonny will be 13 in July. THIRTEEN. I can't believe he is nearly a teenager. I'm so not ready for it. But Jonny is…

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Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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UPDATE: 10/30 ANNIE …


UPDATE: 10/30 ANNIE HAS BEEN FOUND AND REUNITED WITH US! Jonny and Mama were handing out flyers yesterday to the…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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