Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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So Jonny will be 13 in July…


So Jonny will be 13 in July. THIRTEEN. I can't believe he is nearly a teenager. I'm so not ready for it. But Jonny is…

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For Nurse Mommy (video)


Tomorrow we wrap up National Nurses Week which is also the day before Mother's Day (here in the US). When I asked my…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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