Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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How do you take care of yourself?


How do you take care of yourself? Self-care is super important when you are a care-giver. I'm sure you've heard the…

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Happy 7th Birthday Jonah…


Happy 7th Birthday Jonah. Today, we celebrate you. We love you. We are so proud of you. We are so happy you came into…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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