Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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So, it took about a …


So, it took about a week and a half and plenty of Vaseline/chapstick but I think we finally got him to stop peeling his…

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Meeting the rest of the fam.


Jonny had an absolutely marvelous weekend with his cousins and Auntie S. and Uncle G. He went to the zoo, went to…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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