My “very happy” boy (video)


My little goofball is snuggled in bed with his visual feast of a light show giggling and giggling for no particular…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Waiting at the docto…


Waiting at the doctor’s office. I have dreaded bringing Jonah to the doctors. There is simply just nothing good about…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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