Sometime in the middle of the night…


Sometime in the middle of the night, Jojo will get out of bed and come find me to snuggle with me whether I am sleeping…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Celebrating a conver…


Celebrating a conversation I just had with Jojo. (Yes. A CONVERSATION!) Me: “Jojo, do you want some Mac-n-cheese?”…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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