Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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We went to the Mariners game l…


We went to the Mariners game last night. We sat in the tippy-top seats. Both the boys did great. We’ve done enough…

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“Jojo thirsty.”…


“Jojo thirsty.” I have to take a moment to reflect on our progress for the times when I feel we have plateaued or…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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