Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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2017 – A Day in the life… (video)


Went to the park with the boys. Sometimes these trips are hit or miss, depending on who else is there. Jonah has a…

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I’m happy that Jonah…


I’m happy that Jonah is making progress. But you know what? I’m happy with him without progress. Even in regression. I…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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