Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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I have shared we are…


I have shared we are wanting to move to hopefully find a better school placement for Blake. I have shared that he has…

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You don’t know how m…


You don’t know how much work has gone into making that statement a reality. Five years ago, at an IEP meeting, Jonny’s…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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