Jonah’s Diagnosis – Two Perspectives


Life is hard sometimes. Life is also unfair. That is not an observation. It is a fact. In this life, we will lose loved…

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We had a Christmas p…


We had a Christmas pot luck at our house last night. There were 8 other kids that came over. In the past, when that…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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