So Jojo was up at 3a…


So Jojo was up at 3am this morning. He got up, wandered into our room and climbed into bed with us. He has learned that…

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Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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Tonight is a “victory night”


Tonight is a "victory night" because I can make a 6pm pot of coffee to make it through the bed time routine and still…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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