Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Tonight is a “victory night”


Tonight is a "victory night" because I can make a 6pm pot of coffee to make it through the bed time routine and still…

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We had a good day to…


We had a good day today. A good day of therapy, even though I expected it to go horribly (Jonah is turning off all the…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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