So I need a little help here….


So I need a little help here. This is Jonah, today. He can’t stop picking the skin around his mouth. Many people with…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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Meeting the rest of the fam.


Jonny had an absolutely marvelous weekend with his cousins and Auntie S. and Uncle G. He went to the zoo, went to…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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