Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Jonny’s surgery


We just found out that Jonny's surgery to repair the partial cleft in his soft palate and have tubes inserted in his…

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Jonah has figured ou…


Jonah has figured out “present-opening.” And as he’s opening, if he sees something that catches his eye... THAT IS WHAT…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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