April 5, 2023
Jonny receiving ANOT…
Jonny receiving ANOTHER award for his character, because, of course he is… This one presented by the whole school…
April 5, 2023
I asked him this mor…
I asked him this morning how he was feeling after surgery yesterday and no pain meds since he went to bed last night……
April 4, 2023
I set up a “sick sta…
I set up a “sick station” for Jonny on our couch complete with a “breakfast in bed” tray to help him recover from his…
April 4, 2023
Could use some praye…
Could use some prayers, good thoughts and good vibes. Jonny is back in surgery. It’s supposed to be “routine,” but when…
April 3, 2023
So today I took Jona…
So today I took Jonah to Dave and Busters, which is basically an arcade on steroids. He wandered for about 10 minutes…
April 2, 2023
Sometimes, it’s good…
Sometimes, it’s good to take a step back and reflect on how far you have come. People ask me how Jonah is doing. My…
April 2, 2023
Meltdowns at home can be very hard to endure. (video)
Meltdowns at home can be very hard to endure. Public meltdowns are made worse by the onlookers who stare and judge what…









