HI, I'M JASON!
I have been writing about parenthood with two young special needs kids since I became a father in 2008. Jonny is now 15 and has a rare condition called Kabuki Syndrome. Jonah (10) was nonverbal and diagnosed with Autism in 2016. This blog is a chronicle of our special needs journey together. I mostly post my thoughts on Facebook, but you will also find those posts here.
We are an Ausome Family. We run on an abundance of coffee, loads of patience, a lot of love, and a “Touch of Ausome.”
Thank you for coming on this epic journey with us!
LATEST FROM THE BLOG
For Jonah’s birthday last mont…
For Jonah’s birthday last month, we redecorated his room. Gone is the wall full of stick-on alphabet letters and the…
You guys. YOU GUYS!!!…
You guys. YOU GUYS!!! LOOK AT THIS!! Do you know how many HOURS of work with therapists, teachers, and specialists…
Jonny: “Hey Dad. Are you ‘my g…
Jonny: “Hey Dad. Are you ‘my guy?’” Me: “I don’t know. We didn’t really say ‘my guy’ when I was growing up. We said…
As part of his OT, Jonah got t…
As part of his OT, Jonah got to “co-treat” with his brother’s PT yesterday. 🥰 #ausome
I can’t sleep currently. It’s …
I can’t sleep currently. It’s 12:30am and I have to be up to get the boys ready for school in less than 5 hours. sigh…
Today marks 7 years since Jona…
Today marks 7 years since Jonah was “officially” diagnosed with Autism just after his 3rd birthday. And with Jonny just…
This kid… …turns on the hot wa…
This kid… …turns on the hot water in the kitchen, plugs the drain, pours in half a bottle of dish soap, and then just…
For my boys……
For my boys… Every day, you get a little older. With each morning, a litttle piece of your fleeting childhood slips…
Sometimes the stars …
Sometimes the stars align so perfectly in the worst possible way for parents… I am reminded of this memory (Thanks…
Today was the “official” diagn…
Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…
So I need a little insight….
So I need a little insight. This note came home the other day from Jonah’s teacher. “…When a friend was having a bad…
This post came up in my memori…
This post came up in my memories today. I get all the emotions looking back. These were literally my only academic…