HI, I'M JASON!
I have been writing about parenthood with two young special needs kids since I became a father in 2008. Jonny is now 15 and has a rare condition called Kabuki Syndrome. Jonah (10) was nonverbal and diagnosed with Autism in 2016. This blog is a chronicle of our special needs journey together. I mostly post my thoughts on Facebook, but you will also find those posts here.
We are an Ausome Family. We run on an abundance of coffee, loads of patience, a lot of love, and a “Touch of Ausome.”
Thank you for coming on this epic journey with us!
LATEST FROM THE BLOG
Oh man. Parent teach…
Oh man. Parent teacher conferences and IEP meetings. 😳 There were two specific instances at Jonah’s student led…
***sigh***…
sigh So Jonah used to be REALLY into Toy Story. I’m glad he’s not anymore. Really glad. Some of you may remember I…
So over the pandemic…
So over the pandemic, Jonah developed a TON of anxieties. Most of them have faded over the last few months except for a…
Some days I wonder, …
Some days I wonder, “what am I even doing as a parent?” So I took Jonah to the beach today. It was freezing, but he…
Jonah! Do you want t…
Jonah! Do you want to wear your mask to school or “mask in your bag” for school? (He’s gonna be so excited to not have…
Kabuki Syndrome can …
Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…
Do you know what’s m…
Do you know what’s more annoying than watching Encanto on repeat or watching Peppa Pig on repeat? …watching Encanto and…
Are nosebleeds commo…
Are nosebleeds common with autism? Jonah was picking up his toys last night when I noticed there was blood ALL DOWN HIS…
What is the end goal…
What is the end goal of “all of this?” …All the therapies, the interventions, the specialists? Is there a point when my…
Dear School District…
Dear School District I appreciate you approving Jonny’s transportation request to take the bus to and from school and…
Same place. 2022 and…
Same place. 2022 and 2012. Ten years apart. So many fun memories here! We love our Children's Museum of Tacoma!…
Please tell me it’s …
Please tell me it’s not just me. So this first picture came across my memories from 2018. I snapped the 2nd one…
So we learned that Jonah’s teacher will be out for another week…(video)
So we learned that Jonah’s teacher will be out for another week (As of last Thursday). When she finally returns, she…
It’s been a while si…
It’s been a while since I’ve written one of these and to be honest, this one was the hardest to write. This was the…
Do you have picky ea…
Do you have picky eaters? Jonny informed me that he no longer likes green grapes. Only red ones. 🙄 Not to be outdone,…